Thursday, August 4, 2011

...About the beginning.

The story of my family history is long and filled with many many people. When I was a kid, I loved staring at the custom-framed family tree in my grandparent's dining room.  My mom is from a pretty big family.  She is the tenth of eleven children, and youngest girl, born to T.N. (Touey) and Eleanor Andresen.  And this is what I remember most about her childhood.  The abridged version...

My mother, Diane Mary Andresen, was born on May 3, 1959 when my grandmother was 41 years old.  My grandmother was a hardworking lady who, obviously, had a VERY high pain tolerance. My mom always spoke about her mother with great admiration, love, and respect. Grandma was kind of your typical 1940's house-wife, but she also answered phones and was the bookkeeper for my Grandpa's plumbing business. She participated in women's circles, was a devout Catholic, and a public notary. (I know she did much much more, but this is the abridged version remember?)  My Grandpa was also a very hardworking man who ran his own plumbing business, could fix anything, and was a remarkable chess player!  But my mom never spoke very fondly of him and always said she was scared of him.  He was an alcoholic for most of his life, but he quit drinking when my grandmother needed more comprehensive care after years of showing signs of early-onset Alzheimer' Disease.

My mom remembers being about 16 or 17 years old when my grandma's "forgetfulness" became pretty obvious.  It was the mid 1970's, and although Alzheimer's Disease was given its name in the early 1900's, it was relatively new to the public.  There were not a lot of resources available to people effected by the disease, and most people exhibiting signs of dementia up to this point in time were locked away in hospitals, nursing homes, and asylums.  My great-grandmother had been one of those people.  (Did I mention my great-grandmother had the disease too?)  Anyway, so my grandma was about 57 or 58 when she started exhibiting signs of mild to moderate cognitive impairment, and by the time she was about 63, my grandpa had to retire completely to take care of her.  I don't remember much about my grandma, at least, not much about her BEFORE the disease had captured her mind completely.  But I spent a lot of time with her AFTER because my grandpa cared for her at home, with the help of my mom and her sisters, for nearly 20 years after the first symptoms of the disease appeared.  My grandma died in 1998 the day before her 80th birthday, and she spent only about 3 years in a nursing home... I know too much about the later stages of this disease.

Just because I grew up watching this disease claim the life of my mom's hero, does not mean that I am prepared to watch it slowly take away mine.  My mom and I have been through a lot together, and it wasn't until I had my own daughter, nearly 6 years ago, that I truly began to appreciate her.  Over the past year her memory has declined quickly, so I'm going to stop taking her for granted and not waste these last few weeks, months, or years we may have left.

Sunday, July 31, 2011

...I started a blog.

Today I decided to start a blog.  I've been thinking about it for some time now, and today, I finally did it.  After all, this is what my generation does right?  We post our every thought on social media websites and hope that somebody cares enough to comment on our current status. I think, I feel, I am doing (fill in the blank)...  This blog is going to be a lot of the same I'm afraid, but I do have a purpose for starting it...

My mother was diagnosed with Early-Onset Alzheimer's disease this winter at the age of 51, and about a month after receiving the diagnosis, we found out that she had breast cancer too.  So this blog is about our journey living/dealing with two very painful diseases.  If nothing else, I hope this blog will give me the outlet I need to express my feelings, but I hope it will help others find comfort and peace as well.